expressed concern that Ireland seems to have adopted an entirely commercial approach to genomic medicine.
“We urgently need a properly governed genomics programme in Ireland that will ensure that Irish genomics remains within the public domain,” they wrote.Dr Ryan said the sentiment described in the article is “the direction that we plan to go”. The plan was for the pharmaceutical sector to do “a lot of the funding up front”. Genomics Medicine Ireland would sell them exclusive access “for a year or two”, and then begin to share the data.
She said in the long term, the company wanted to “integrate into the Irish health system and to do that” it would have to open up the database. “But it has to have a time delay” so that access to the data can initially be sold.
I share my genetic data every weekend
Anne JONES according to their website
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Source: IrishMirror - 🏆 4. / 98 Read more »