$2.1 million drug to treat rare genetic disease approved by FDA

They don't know if their children will ever walk. But finding other families online has given them hope.

She remembers watching a video for one the trials that showed the impact of a single dose of gene therapy in pigs. Initially the pigs were shown dragging their feet, but after therapy, “it show[ed] the pig walking perfectly,” Almeida said. “We knew right away that this was it. This was what we wanted for Matt.”

“Critics are not actually thinking about how our healthcare systems work,” Vas Narasimhan said. “For transplants, we spend $3 million to $5 million [per patient] with far less efficacy than we see with a medicine like this. We’re trying to price this at 50 percent of what is the current cost of care over ten years for these children.”

Canada does this for everyone.

That doesn’t mean insurance companies will pay for it (even if you have insurance). They will most likely use the phrase “experimental” or “not widely recognized by the medical community” as reasons for denial. Don’t forget the drug is probably not even your RX benefit package.

“We’re trying to price this at 50 percent of what is the current cost of care over ten years for these children.” Fucking vultures. How much does the drug cost to make is what I want to know. that should have been your first question to them.

ONLY FEW COULD AFFORD. WHEN WE “AUCTION” LIFE OR DEATH. WE ARE FINISHED AS A MORAL SOCIETY !!

So for the price of a 'la Ferrari' one could save a kid😞

Only the super wealthy will be able to potentially save their kids life while everyone else is screwed ProfitOverHealth ForProfitHealthcare GreedyPharmacuticals MedicareForAll

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