My Sudden Symptoms Left Doctors Stumped—Until a Rare Diagnosis

The summer before my first year of high school, I took daily two-mile runs down the country road I lived on in western Massachusetts. I was training for my third season on the varsity soccer team and enjoyed pushing my body, sprinting from one telephone pole to the next, then slowing to a jog, then sprinting again.But one morning when I went for my run, something was different—I'd barely made it past the first telephone pole when my body begged me to stop.

Reading stories of people suffering from Long Covid and POTS, I'm instantly brought back to that phase in my life. I remember feeling like a stranger in my own body, constantly fighting against it to get through each day.Doctors, friends, and healthy people didn't understand—the symptoms were overpowering, and the fear that they would always be there only added to the exhaustion.

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