Mum warns time is running out for her daughter as wonder drug is denied

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EXCLUSIVE: Heidi Prescott-Booth has a rare debilitating condition called SMA, but the only treatment is not available because health chiefs say it costs too much

When health chiefs meet to discuss a new 'wonder drug' this week, they will decide the futures of hundreds of children like Heidi Prescott-Booth.

 

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Daily mirror let us know if you would like to cover another type of sma. My son has type 2 and we are fighting for the drug also. Heidi and her mum are amazing xx

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