, with her husband, Alan, 44, a managing director, and their three children, Sofia, Olivia, three, and Lyra, three, hopes human clinical trials, which are set to start in 2024, will halt the progression of her daughter’s degenerative disease.Your postcode can impact your life expectancy - use our interactive map to find out the average in your area
DETERMINED MUM: Dr Michelle Teng founded the H-ABC Foundation after diagnosing her daughter, Sofia, with a genetic disease that affects the nervous system There is no cure for H-ABC and, if untreated, Sofia’s mobility will deteriorate, with most people with the condition living to their teens or early 20s. The news was a devastating blow for Michelle and her family, but she says she immediately became focused on finding a solution.
"It is every parent’s nightmare but for me, I think I could hold on to the fact that I understood the condition and that meant I could potentially find a way forward to treat the condition or look at different therapeutic options that are out there. In a way, I was saved by my own rational thinking because I think I would have just spent many, many days crying otherwise."
MAKING PROGRESS: Michelle’s biotech company, SynaptixBio, is now developing the world’s first treatment for the condition
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