Across the country, one in every 500 African American children will have sickle cell disease, but access to care is hard to come by with only about a dozen providers across Indiana.
"It's going to show the parents that they have someone to relate to and it's going to show the lawmakers and decision makers hey, like this is real,” Akilah Coleman said. “Even if it doesn't affect you, you’re seeing us. You’re seeing that, you know, it exists and we still need a lot of help to get it along the way."
She didn’t know she was a carrier from birth because she was born in Jamaica. There, sickle cell tests from birth aren't as common as they are in the U.S.
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