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ALS patients contend with $158K price tag on new drug

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For two years, Becky Mourey pushed the Food and Drug Administration to approve an experimental drug for her Lou Gehrig's disease.

“That study could be hugely important in telling us whether this one ingredient—which is very inexpensive— is actually effective,” said Diana Zuckerman of the non-profit National Center for Health Research, which analyzes medical research.

 

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Lost my Mom a year ago to ALS.

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