In this photo provided by Clifford Law Offices, Karina Aguilar, her husband, Temo Aguilar, and their son Felipe Aguilar attend a news conference on Aug. 3, 2021, at the office of ASI/NE Healthcare Services in Chicago. After Itza Pantoja's severely disabled son died at the age of 16, she made it her mission to ensure that the wheelchairs, beds and other equipment and supplies that had helped him got to others who needed them.
The mother's effort highlighted not only how hard it can be to get such equipment — even with insurance — but also the difficulty that can be encountered when trying to donate it. The journey also shows the community built around not only need, but a desire to help. Pantoja said they sought out therapies and equipment to make his life better, scrambling to raise money when insurance wouldn’t pay.
Felipe’s mother, Karina Aguilar, said it has often been difficult to get the equipment her son needs. “There’s always some excuses for insurance not to pay, not to consider that equipment as a … medical necessity,” she said.Among items from the Pantoja family that have been especially helpful are a car seat that’s big enough for Felipe, a chair that helps him stand up and a bed designed so he doesn't fall off.
She turned to Pedro Soler, the attorney in Puerto Rico who’d handled a medical malpractice case the family filed over Dylan's condition. But Soler found that the cost would be too high, and there were no guarantees when it would arrive.So Soler got in touch with a law firm he works with in Chicago, Clifford Law Offices, which reached out to a judge who got in touch with ASI.
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