It was jutting out to the side and he couldn't bring it back into line.Despite being reasonably fit and active, the 64-year-old, from the Illawarra region on theMr Riley said he personally knew three people in the Lake Illawarra region with MND and had heard of 10 others.
While about 10 per cent of MND cases are genetic, what is causing the vast majority of the disease, and its growth, is still a mystery. "It is a little bit difficult to make observations because of referral patterns but we have had several patients from the western shore of Lake Illawarra, which is where grew up," Professor Rowe said.
Professor Dominic Rowe from Macquarie University has called for the NSW government to list MND as a notifiable disease."We strongly suspect that this disease has an environmental element that we are yet to define," Professor Rowe said. Professor Rowe said he and his colleagues had a promising meeting with NSW Health authorities earlier this year, but the latest COVID-19 wave appeared to have derailed discussions.
"Many issues must be considered before making a condition notifiable, but generally a specific public health response should be necessary to protect the health of the community. "Considering I probably know a maximum of 1000 people in the town where I come from, that number seemed a bit high," Mr Riley said.
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