Treating Disease Is No Substitute for Caring for the Ill

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America’s health-care system focuses on curing acute problems but does far too little to support patients with chronic maladies

I still sometimes wake in terror, haunted by the nightmare of an episode almost 15 years ago when my wife Joan, who was suffering from Alzheimer’s disease, accidentally locked herself in our bathroom. Not only had the disease robbed Joan of her reasoning, it had also left her functionally blind.

Pounding on the door and screaming in fright, she couldn’t follow the simple instructions that I kept repeating about how to unlock the heavy bathroom door—and short of breaking it down, I had no way to get to her. I tried to reassure her that a locksmith was on the way, but she grew increasingly distraught, falling to the floor...

 

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