Securing longer, healthier, happier lives—securing better health for all Americans—is the fundamental goal of the vision President Trump has for our healthcare system.Thank you, Peter [Saltonstall], for that kind introduction, and thank you all for having me here today. It's an honor to be with you.
Your hope and your tenacity are contagious. I think you all deserve a round of applause for the commitment and courage you show. The President has a particular vision for healthcare: a system with affordable, patient-centric, personalized care, a system that puts you in control, provides peace of mind, and treats you like a human being, not a number.
When it comes to rare diseases, that means protecting the parts of our system that undergird innovation toward the treatments and cures we need, while trying to fix the market failures that have led some diseases to be neglected for far too long. In part, that means keeping the promise President Trump has made to Americans with preexisting conditions.
State Medicaid programs in particular struggled with the fact that they wanted to provide the cure, but simply couldn't afford providing it to all the patients who needed it, all at once. State budgets simply couldn't handle it. Lots of discussion around healthcare in Washington often focuses on financing, but the President's vision is broader than that: He also seeks to improve the actual delivery of care, and secure better value from that care.
You just heard from Dr. Sharpless about the strong commitment FDA has to these efforts, particularly as they relate to rare diseases. Government has a major role to play in helping finance treatments and cures for rare and neglected diseases. NIH has also invested in translational science, to help develop the knowledge we need about rare diseases to support clinical trials.
The final platform of the President's vision I mentioned is impactable health areas, and I want to discuss one rare disease in particular, sickle-cell disease, where we believe we can make a large impact, quite soon. Along with repeated episodes of excruciating pain, SCD can cause infections, lung damage, blindness, heart and kidney failure, and strokes. Depression is also common in patients with sickle cell disease.
SecAzar Then why SecAzar aren't we allowed healthier lifestyle options as ADULTS to vaping ? This statement should only further your support our right of Self Care. Especially knowing, when used properly, bought from authorized stores, & at levels of 30mg & lower you know it's safer
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