Do we have a right to know if we could have the Huntington’s disease gene?

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Not telling your child that this hereditary condition is in the family can be devastating later on

On a lazy Sunday morning in May last year, Isobel Lloyd was at her boyfriend’s house, having coffee with his mum. The conversation had worked around to Lloyd’s grandma – her mother’s mother – who’d died in her 50s, when Lloyd was very young. Lloyd’s only memories of her had been hospice visits where her grandma lay bedbound, unable to talk or swallow, with no control over how her body moved. Lloyd had forgotten the name of her grandma’s disease, hadn’t thought about it in years.

 

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Yes. I’m autistic and so are my three children. It wasn’t commonly known during my twenties that autism is hereditary. My children know they have it from me and chances are that if they have children themselves, most likely their children will be autistic too.

kuku27 Why not?

I remember the second I found out about HD as a child. It wasn’t normal it was a horror story. It remains a horror story. And you can’t break medical confidentiality to tell people, it’s a can of worms.there is no treatment so the consequences are not immediate.

YES!

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