An Irish man with a rare form of cancer has raised over €120,000 in a race against time to avail of private drugs and treatments not yet available on the NHS.
He spoke to Belfast Live of the emotional rollercoaster he has been on and how the rare disease has affected his life."Around Christmas 2017 I felt a bit of discomfort in my shoulder and I initially thought I had done something to it while at the gym or playing football. He added: "The shoulder specialist didn't even do any scans and give me a steroid injection into my shoulder.
"So this was the plan up until it was discovered that the chemo wasn't working and the tumour was actually spreading into my chest and my armpit. The "devastated" budding scientist had been researching drug delivery systems which could be used in years to come for treatment of cancer. A GoFundMe page was set up by Scott's mum, with a target of £120,000 to help Scott access life saving drugs not available on the NHS.He said: "I have been in touch with patients in America and in Europe and there is other treatments out there it just isn't available in the UK.
"A patient in America is receiving immunotherapy and she's now in remission after a year and she was in the exact same situation that I am now in. "They've been able to point me in the right direction of people who can help me. It has been fantastic and really good for my family as well for them to follow the amount of support I am getting.