From left, volunteers Angie Ramalho, Amber Bernard and Jennifer Hooper at the Clays for Kids Fundraising Event in September 2023.
He was just 24 years old and within 18 months of diagnosis he looked almost unrecognizable. He’d been a strapping young man; 6 feet tall and weighing 200 pounds. But toward the end, his weight had dropped to around 70 pounds. “He was just really skin and bones,” Ms. Ramalho recalled. “l’ll never get that visual out of out of my head.”
While her cousin was a young adult, he was still a dependent and Ms. Ramalho could relate to the challenges many families face. “The reality is we just want to make things better for these kids and their caregivers,” she said.
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