MND clinical trials receive £500,000 boost on Doddie Weir’s birthday

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The rugby legend died in November 2022 from the rare neurodegenerative disease.

Clinical trials into motor neurone disease have received a £500,000 boost from a charity founded by late rugby legend Doddie Weir on what would have been his 54th birthday.

The late Queen met Doddie Weir during a garden party at the Palace of Holyroodhouse in Edinburgh in 2018The foundation has already invested more than £3 million in trial centres to help recruit staff for the work, and to support the delivery of trials. Jessica Lee, director of research at My Name’5 Doddie Foundation, said: “When Doddie was diagnosed in 2016, there were few MND clinical trials running in the UK. Since then, there has been significant progress and an increased investment in MND trials.“However, despite the increasing number of trials, not all centres are currently able to deliver them at pace due to a lack of specialised staff with dedicated time to spend on MND projects.

 

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