Scots mum fears daughter will die after red tape scuppers lifesaving treatment

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Cerebral Palsy News

Jackie Baillie,Labour Party,NHS Forth Valley

Freya Hunter, 14, has complex care needs but her local health board refuses to allow her care team to travel with her for vital four-day-training to help her breathing.

A desperately ill child is unable to have life-saving treatment because of NHS red tape. Freya Hunter, 14, needs to go into the Royal Hospital for Children, Glasgow, for a trial of a machine to help her breathing and keep her alive over winter.

The charity worker said: “Freya has a really compromised airway, she is completely -immobile and has to have everything done for her. Get the latest headlines sent straight to your inbox with our newsletter Did you know you can keep up to date with the latest news by signing up to our daily newsletter?We also send coronavirus updates at 5pm on weekdays, and a round up of the week's must-read stories on Sunday afternoons.You can pop your email address into the sign up box above, hit Subscribe and we'll do the rest.

“I pleaded with Forth Valley to let the team who look after her at home to support us in Glasgow, but they refused.It was recently discovered that Freya was retaining carbon dioxide and needs to be trialled for Bipap. Labour’s Jackie Baillie said: “In -Scotland there is one NHS so it seems extraordinary to me that health boards appear to be debating who is funding life-saving care for Freya.Labour have vowed to cut the number of health boards if they win the Scottish Parliament election in 2026.

 

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