Teen With Tumor Disorder Carney-Starakis Syndrome Survives Open Heart Surgery

When Amy Simpson was 11, she started experiencing dizzy spells and stomach pain. At the time, she was going through a lot of changes and thought stress caused her symptoms. Still, her sister encouraged her to see a doctor. “My sister brought it to my attention, like, 'Hey, it’s not normal that this is happening. We should really get you checked out,'” Amy, 17, from Brownsville, Texas, tells TODAY.com. “It was nerve-wracking.

“She was having these episodes of chest pain, dizziness and passing out,” Aggarwal says, adding that the tumor compressed the left main coronary artery “to almost 10-15% of its normal size.” That restriction caused the episodes where her heart stopped. “The coronary arteries are like the gas lines to the heart,” Salazar, a pediatric cardiothoracic surgeon at Children’s Memorial Hermann Hospital, tells TODAY.com.

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