My husband said he'd found a cure for his illness. A year later he was gone

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MND is a distressing, debilitating disease that ultimately robs its victims of the ability to move, speak, eat and breathe.

Julie and Nigel in their early years together ‘Life-limiting’. ‘No cure’. These were the words the doctor used to explain that my husband, Nigel, had three to five years to live, and I felt numb. Moments like this are not at all what you imagine. There’s no darkening sky, no rumble of thunder. Your heart doesn’t miss a beat and the world doesn’t hold its breath. Everything remains the same. And yet, for us, nothing would ever be the same again.

On our last Christmas Day together, in December 2016, when all the family were gathered, he was in charge of music – he had an extensive playlist on his iPad – and he played the first two words of George Michael’s Last Christmas. He stopped the music. Then played the two words, ‘Last Christmas…’ again. Then stopped it, and played them again. He thought it was incredibly funny. That was Nigel.

 

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