Lifesaving therapy for children with a rare disease has $4.25M price tag

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A new gene therapy for the fatal genetic disorder metachromatic leukodystrophy will carry a wholesale price of $4.25 million, its manufacturer announced Wednesday, making it the world's most expensive medicine.

<p>ATLANTA — A new gene therapy for the fatal genetic disorder metachromatic leukodystrophy will carry a wholesale price of $4.

</p><p>Manufacturers of gene therapies say the big prices reflect big benefits — the chance to be free of a disabling or even fatal disease — and they point out they need&

 

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