Maybe you wrote this tweet in a moment of frustration, but it’s quite cold-hearted and should be revokedBarrister David Turner QC, father to a CF sufferer, replied: “Please confirm you are not suggesting debates on autism and inherited rare diseases are a waste of time? Literally thousands of patients are dying for life-saving drugs now.” “Hundreds are dying from rare diseases because NICE’s appraisal system is not fit for purpose while Brexit drags on and gets in the way of proper business.
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