Analysis suggests the need for pharma research into non-motor symptoms of Parkinson’s disease

The authors found a broad consensus in the online conversations of patients with Parkinson’s Disease. Many cited a need for treatment and research to address non-motor symptoms like sleep disturbance, fatigue and nausea. One patient commented, ‘My tremor is nothing compared to the nausea and fatigue.’

The study was produced by specialist digital insights consultancy, Creation Healthcare, who analyzed the conversations of more than 7,200 global online healthcare professionals and their interactions with patients with the illness, and patient advocacy groups over the 12-month period 01 Sep 2022 and 01 Sep 2023.

In response to patients’ calls on the issue, Ingrid Estmann, a neurologist, argued that ‘we need to be bold, creative, out of the box and avoid easy road of motor outcomes.’ The authors argue that late- and misdiagnosis is likely to be a barrier to market for pharmaceutical companies investing in research and development in Parkinson’s Diabetes. They suggest that tackling barriers to early diagnosis could result in identification of patients with mild disease which could improve trial outcomes.

They call on the pharmaceutical industry to seize the opportunity to connect with different stakeholders and to amplify their voice and champion the needs of patients more effectively. “The insights of this analysis are fascinating.

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