Lisa Brains’ life has been anything but easy, and sure, she’s struggled through some dark times.Lisa was born with Epidermolysis Bullosa , a group of genetic conditions that result in easy blistering of the skin and mucous membranes.“It’s a degenerative disease because the skin is constantly blistering and breaking down into second and third degree burns,” she tells 9Honey. “Naturally, the skin becomes more and more scared. It sort of fuses your body.
“My first memory of the condition is probably my clothes sticking to me,” she says of her childhood. “I was scratching the surface of my eyes in my sleep and it was very painful. “It takes about three hours to do them and after my dressings are done, I have a rest and then we do other stuff like personal care.”Lisa has a pet dog – Nepi - and a pet chicken – Freaky Legs - who keep her company, and enjoys craft hobbies.“I have noticed as I get older the years come with more restrictions,” Lisa says. “You start to really feel that the circulation starts to get worse. I have started getting pain due to the circulation restriction and my armpits are sort of webbed.
That’s why she is so grateful to the charity DEBRA Australia for helping provide her with all that she needs.
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