$2.4m for a chance to live: 3-month-old baby with rare condition requires 'world's most expensive medicine'

It is known as the "world's most expensive medicine", priced at a jaw-dropping $2.4 million per pop. But it's also what three-month-old baby Lucas needs in order to have a chance at life.known as Spinal Muscular Atrophy Type 1, reported Shin Min Daily News on Saturday .

In an interview with the Chinese evening daily, Lucas' parents — Andy Wang and Lavin Zhang — shared how when Lucas was born, they'd notice that his head tended toHe also wasn't like other infants who enjoyed kicking their legs and could only feed for a short period of time. But being new parents, they didn't think that anything was out of the ordinary.

When Lucas was admitted to hospital for a fever on June 10 and diagnosed with a Covid-19 infection, his parents once again requested for doctors to do a check."We were devastated at the time. The only good thing was that we'd discovered it early," said Wang. A drug known as Zolgensma is able to cure the condition completely, Wang added, but it costs an eye-watering $2.4 million.

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