Had I not gotten the genetic testing that revealed I had Lynch syndrome, I never would have gotten the full hysterectomy showing I hadJust when I thought I was in the clear, cancer struck again. In 2017, I noticed a small pebble-like blemish on my backside. I went to the dermatologist to have it checked out and it turned out to be— 2 inches deep. Luckily, the dermatologist was able to remove the cancer entirely.
Learning that I have Lynch syndrome was groundbreaking for me and led me to reflect on how many other people’s lives may be saved by the discovery. I’ve become deeply involved with patient advocacy groups and strongly encourage people to undergoGenetic testing can be a scary concept, especially for people of color, who have been historically exploited by the medical industry and may have some mistrust toward these types of tests.
Living with Lynch syndrome means never letting down your guard. I am on regular surveillance. Every six months I go to my oncologist, dermatologist and gynecologist. And I get aIn many ways I think not so much about “if” cancer will return but “when” cancer will return. But this doesn’t get me down. Not one bit. I’ve been able to do so much as a survivor, and sharing my story and helping others is so therapeutic.
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