'The mental load is a lot': Charting the course for paediatric care in Canberra

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A health program aimed at easing the burden on Canberra region families with sick children who travel interstate for treatment or see multiple specialists is being expanded — but, it's also highlighting an absence of some services.

The Paediatric Liaison and Navigation Service acts as a point of contact for parents and carers to help link them with services in the ACT and New South Wales.

"The administration, if you can imagine dealing with five specialists – who, by the way, are amazing – just the mental load to coordinate all of that and have all the information available to them is a lot.The Gaballone family was referred to the PLaNS team.The service has also helped Ms Gaballone and her family have peace of mind in the event of an emergency.

"So it actually reduces trauma, but it also means that the medical team – when you present to the emergency department – have everything at their fingertips because every time it's going to be a different doctor or different nurse." "We really look at creative strategies in working around these barriers rather than just following what has been done before."Having dealt extensively with various elements of the ACT's health system, Ms Gabellone said it was a model that could be replicated elsewhere.

"A lot of those transitions are simply about building good relationships between services — I don't think we focus enough on that."

 

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