We're working alongside Harry's Hydrocephalus Awareness Trust to call for an improved set of national guidelines that would standardise health care for babies across England.Last updated 21st Feb 2023
Midwives, GPs, Health Visitors etc to briefly explain why they perform each one of their checks. For example - does the parent know why head circumference measurement is important and do they know when to expect this measurement to be taken again?A review of the current NICE guidelines which discuss when and how a health professional should refer a child with concerning symptoms to a specialist team.
"I think if we had these new and improved national guidelines, every single parent would benefit, whether or not their child goes on to receive any kind of diagnosis. "I think it's undeniable that in the majority of cases, early intervention is key to achieving the best outcomes for any child with a life threatening condition."