Northeast Ohio grandmother shares brave battle with rare cancer on Rare Disease Day

It's a day that highlights the roughly 350 million people across the world that are affected by a rare disease.Sue Giles of Burton spent the last several years fighting for her life against a rare form of Lymphoma that she says nearly killed her.Hope, her family and the health systems in Cleveland, she says, are what got her through the really rough days.Even when Giles says she was nearing death—the littlest reminders of her children and grandchildren gave her hope.

As a frequent blood donor, Sue initially noticed an extreme drop in energy and a seismic shift in her health roughly ten years ago. "That's a very scary thing. It's like Stage 4, nobody recovers from Stage 4, but with Lymphoma it's different," Giles said.Sue's kidneys were failing, and her body slowly began shutting down.

This time doctors tried immunotherapy, but it also did not work as her chest started to fill up with fluid.

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