Heartbreak as parents told baby 'won't outlive childhood'

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Truly devastating

A Nottingham mum has shared her heartbreak after her nine-month-old baby was diagnosed with a rare disease that means she will not live past childhood. Reanna Cotterill, of Bilborough, was told on February 22 that her daughter Milanna-May Eshelby had Mitochondrial Disease, a life-limiting condition.

After taking her to Queen's Medical Centre, Milanna was given treatment for epilepsy. However, she continued to have fits and her parents, Ms Cotterill and Malaky Eshelby, were given the worst news a parent could receive."She's not going to have a long life, they've told her that it varies between each and every person," said Ms Cotterill. "She could pass away in the next year, in the next two years.

"It's just about making the last years of Milanna's life the best we possibly can." Since receiving the devastating news, the family have started a fundraiser to help pay for treatment in America. She expects the treatment to cost £800,000 but says £10,000 will help cover the flight, accommodation and initial appointment. "I couldn't believe it. A lot of strangers have donated and a lot of people who go to my salon have donated and shared," she said.

 

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