"My mom asked my doctors why I couldn't get a sonogram to see what was happening inside my abdomen; they said it wasn't needed," Alice recalled. "My dad asked why I couldn't get antibiotics; the doctors said for a viral infection they could do more harm than good. My parents kept pushing for a gastroenterologist who might have more insight about my condition to evaluate me, but one never came.
However, things took a turn after Alice was rushed to get an emergency ultrasound that finally revealed the cause of all her pain: a perforated appendix. "When I learned my diagnosis, I was almost relieved," she wrote, noting how helpless she felt not being listened to by doctors. "At least the doctors now had a plan."diagnosis, stating that it can be missed in up to 15 percent of children.
"It breaks my heart to think about the boys and girls who don't have parents who can get the phone number of the hospital administrator—who can't make their voices break through," Alice added. "I still can't believe this happened to me—and I don't want it to happen to anyone else.