A federal law known as the Clinical Treatment Act states patients like her are supposed to be able to receive potentially life-saving treatment. It went into effect on January 1, 2022.
In fact, she intentionally tries not to describe her appendiceal cancer diagnosis as a"battle" — it's a"journey" or"healing." The treatment is not FDA approved but is currently going through clinical trials. Doctors described Ariel as a perfect candidate. By the time they found it, Ariel's parents were shocked to learn potentially life-saving information was kept from their daughter.
Healthy U had been communicating with FOX 13 News for months but ultimately declined an on-camera interview. "When they say they didn't know how it's supposed to work, should they have known?" asked FOX 13 News investigative reporter Adam Herbets.
KolleneSnow AdamHerbets What the fuck?! That is beyond wrong. I guarantee you that if it was their child, she would get the help she needed. God, that pisses me off!!!! I hope she gets justice. SheMattersToo
marklewismd - I'd love for you to watch this story + to chat if you have a few minutes.
AdamHerbets Sad that medical care is so much more accessible and affordable in many other countries. Nothing short of shameful corporate greed. I understand the companies need to make a profit, but not by creating a mountain of beaurcracy for those who should be covered.
AdamHerbets The answer is greedy capitalism in our medical system. What a fu*ked up country this is.
Yeti1181 AdamHerbets Answer: Because the American healthcare system is not designed to help patients. It is designed to make money for executives.
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