Maria Maciukas, from Dublin, will be waved off by her mother Gunita Spirge on her first day at a primary school.
Ms Spirge contacted EB charity Debra Ireland for help and they decided to produce an illustrated guide to EB especially for staff and pupils at Maria’s school. Ms Spirge described the help she and her family have received from Debra Ireland since Maria’s diagnosis as"invaluable"."We don’t have grannies, sisters or in-laws. We don’t have them here," she said.
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