SINGAPORE — It has been almost a month since Mr Nabeel Salim Abdat and his wife Syahirah Yakub have held their two-month-old son in their arms.
There is no publicly available data on the number of spinal muscular atrophy cases in Singapore, but figures from the Nationwide Children's Hospital in the United States showed that one in 6,000 babies are born with this disease. If his family raises enough money, Zayn will be able to undergo the one-time gene therapy to stop the progression of the disease.
“We knew babies should not be snoring, and he also made this wheezing sound. He was warded because he was still running a fever, so when his fever improved, thought nothing of it and we went back home,” she said. By Aug 4, he drank just 10ml of milk in half an hour, a sixth of what he would have usually consumed.I never want to go through that ever again… I’m just thankful it happened while I was awake and we took him to the A&E on the right day at the right time.They went to the accident and emergency unit of National University Hospital at about 4pm to 5pm and he was warded at about 10pm to 11pm.Due to Covid-19 restrictions, vulnerable patients can only have one caregiver in the ward with them.
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