This article by Anna Garnett, Western University; Maureen Markle-Reid, McMaster University, and Patricia H Strachan, McMaster University originally appeared on the Conversation and is published here with permission.
In order to better support caregivers, we sought to understand the considerations they made when choosing to access and use supportive services. Our research entailed conducting interviews with stroke caregivers and health providers. This enabled us to better understand their experience as caregivers and helped us to identify what helped or hindered their ability to find and use suitable supports.
Depending on the needs of the person living with stroke, caregivers may help with dressing and washing and provide support with mobility, communication and many other tasks. Becoming a caregiver is a huge adjustment and can be overwhelming. Over time, caregivers may become more comfortable with caregiving and find it rewarding, but caregiving can also take a toll on their health.
Some community-based programs cost money and the person living with stroke may need specialized transportation that also comes with a cost. Sometimes a caregivers must leave their job or the person living with stroke can no longer work, resulting in loss of income. Over time, costs can become prohibitive.
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