Just In Time: Shortness of breath led Saskatchewan man to rare disease diagnosis

The following morning, I was sitting at home having coffee when I got a call from Regina General Hospital, asking me to be in the emergency department by 10:30 that morning — they said I would be admitted. More tests were done and then the doctors told me I had this condition called ANCA-associated vasculitis. They said they weren’t really sure what caused it, and that it’s actually quite rare.

I was in the hospital for about a week, and they put me on some drugs — an infusion of chemicals to hopefully bring the vasculitis into remission. We tried a bunch until we got the right combinations. The worst was prednisone, which caused a lot of swelling and shaking. I also started getting bad cramps in my legs in the middle of the night. When I was referred to a different specialist she reduced the dosage, and I’ve been fine ever since.

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