Girl’s sweet quirk turns out to be deadly disease

Little Evelyn Ohlsson gained the nickname “happy feet” as her parents Laura and Craig noticed they were the only thing their toddler seemed to wiggle.

Laura told local news site Herts Live: “We always used to say that she had happy feet. You know, it just seemed like her little thing.” She explained: “I’d seen a video whilst I’d been doing too much digging and I immediately thought to myself: ‘Oh my god, Evelyn does that. That’s what she does.’Another telling sign of the genetic disease is when the top of the chest narrows due to muscle weakness in the rib cage, known as a bell-shaped chest.

Laura’s world soon came crashing down when she held a family friend’s baby who was born three months after Evelyn – and instantly felt the strength in the infant’s muscles. “There’s one phrase that always sticks with me when we first found out. We’re grieving the life that we thought we were going to have.”

“We owe it to Evelyn and we owe it to other babies to make sure that people know what this is,” Laura said.“She has so many needles and tests and things done to her, but she’s always got a smile on her face. She really is just the happiest baby, despite everything.”

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