Think tank backs govt trust fund proposal to improve access to rare disease treatment

IDEAS CEO Tricia Yeoh says she is very encouraged by the Malaysian government’s intentions to pursue a framework for rare diseases.

In a statement, the Institute for Democracy and Economic Affairs said “a government-led trust fund model must be premised on the principles of sustainability and good governance,” citing previous efforts to set up local trust funds and similar overseas initiatives. It said this in releasing a policy paper titled ‘The Next Steps for Rare Diseases in Malaysia: Improving Access to Rare Disease Treatments,’ which outlines how best to govern such a fund and advocates for regional collaboration.

“Malaysia should prioritise a flexible approach to regional collaboration. Malaysia should embark on efforts to improve regional collaboration by building on existing regional platforms such as the Asia-Pacific Economic Cooperation or the Association of Southeast Asian Nations .”

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