"They immediately took him and worked on him," Storey said."He was stable and they were taking him to the NICU, so my husband went with them and stayed in contact with me."
Storey held her son one week after he was born. Jackson had countless fractures in his arms, legs and ribs from the birth and handling."He really doesn't cry very often unless he has a fracture -- even with that, his demeanor is calm and sweet," Storey said."He knows how to move his body for you. You have to pick him up a certain way, very flat, broad ... he will lift his shoulders so you can get underneath him. It's wild how smart he is. You can see it in his eyes.
Storey said she's been connecting with others who have OI, and parents of children who have OI. Her goal is to raise awareness, she said.
Why are they prolonging his pain an own soffering?
What a cutie❤️ Cheering this kid on 🥳
im sorry i have to do it for the boys😂
May God Bless this baby ang the good news about brittle bone diseases! Being a Shriner I always enjoy young spokesman who has this disorder and we all see him so cheerful on Advertisement on TV for Shriners! Just a note to remind families that Shriners might be able to help Call!
my prayers and thoughts
ｶﾞﾝﾊﾞﾚｰ👶💠💖
Bless his heart! He’s so darn cute, too!!!
Cutie!!
🥺
thats bad
Flykhid2